Service for the pseudonymization of electronic healthcare records based on ISO/EN 13606 for the secondary use of information

Somolinos, Roberto and Muñoz, Adolfo and Hernando Pérez, María Elena and Pascual Carrasco, Mario and Cáceres, Jesús and Sánchez de Madariaga, Ricardo and Fragua, Juan A. and Serrano, Pablo and Hernández Salvador, Carlos (2014). Service for the pseudonymization of electronic healthcare records based on ISO/EN 13606 for the secondary use of information. "IEEE Journal of Biomedical and Health Informatics", v. PP (n. 99); pp. 1-8. ISSN 2168-2194. https://doi.org/10.1109/JBHI.2014.2360546.

Description

Title: Service for the pseudonymization of electronic healthcare records based on ISO/EN 13606 for the secondary use of information
Author/s:
  • Somolinos, Roberto
  • Muñoz, Adolfo
  • Hernando Pérez, María Elena
  • Pascual Carrasco, Mario
  • Cáceres, Jesús
  • Sánchez de Madariaga, Ricardo
  • Fragua, Juan A.
  • Serrano, Pablo
  • Hernández Salvador, Carlos
Item Type: Article
Título de Revista/Publicación: IEEE Journal of Biomedical and Health Informatics
Date: September 2014
ISSN: 2168-2194
Volume: PP
Subjects:
Freetext Keywords: Electronic medical records, identification of persons, ISO standards, medical information systems, pseudonymization, telemedicine, web services
Faculty: E.T.S.I. Telecomunicación (UPM)
Department: Tecnología Fotónica y Bioingeniería
Creative Commons Licenses: Recognition - No derivative works - Non commercial

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Abstract

The availability of electronic health data favors scientific advance through the creation of repositories for secondary use. Data anonymization is a mandatory step to comply with current legislation. A service for the pseudonymization of electronic healthcare record (EHR) extracts aimed at facilitating the exchange of clinical information for secondary use in compliance with legislation on data protection is presented. According to ISO/TS 25237, pseudonymization is a particular type of anonymization. This tool performs the anonymizations by maintaining three quasi-identifiers (gender, date of birth and place of residence) with a degree of specification selected by the user. The developed system is based on the ISO/EN 13606 norm using its characteristics specifically favorable for anonymization. The service is made up of two independent modules: the demographic server and the pseudonymizing module. The demographic server supports the permanent storage of the demographic entities and the management of the identifiers. The pseudonymizing module anonymizes the ISO/EN 13606 extracts. The pseudonymizing process consists of four phases: the storage of the demographic information included in the extract, the substitution of the identifiers, the elimination of the demographic information of the extract and the elimination of key data in free-text fields. The described pseudonymizing system was used in three Telemedicine research projects with satisfactory results. A problem was detected with the type of data in a demographic data field and a proposal for modification was prepared for the group in charge of the drawing up and revision of the ISO/EN 13606 norm.

More information

Item ID: 35429
DC Identifier: http://oa.upm.es/35429/
OAI Identifier: oai:oa.upm.es:35429
DOI: 10.1109/JBHI.2014.2360546
Official URL: http://ieeexplore.ieee.org/xpl/articleDetails.jsp?arnumber=6911939&sortType%3Dasc_p_Sequence%26filter%3DAND%28p_IS_Number%3A6363502%29
Deposited by: Memoria Investigacion
Deposited on: 27 May 2015 16:14
Last Modified: 27 May 2015 16:14
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